The girl next door came by looking for her dog, so I spent 10 minutes talking to her. I went to bed and watched Net flicks'. When I got up to use the bathroom before going to sleep I noticed a HOT red line across my stomach from DPU. Oh yes, because CFS and FM aren't enough. I suffer from DPU to. I had tried something my friend mentioned, I put ice on my pre-DPU breakout HOT painful lower back. It was helpful. So I put the ice on my belly and luckily 30 minutes later I was almost normal. I avoided steroids again.
All summer I was on steroids. Then Sept.10th I broke out in DPU again because of going next door for Pig Roast for 90 minutes in my wheelchair. Since then it keeps coming back. I do next to nothing, but it is never little enough.
If I lay in bed literally for 10+ days I will eventually feel almost normal. I will have energy to do things. I will try not to do stuff but it's hard. I will still over-do it even though I am sure I won't. I can not bear another massive DPU flare, please God no. My mind will clear and I will star creating things. I am an entrepreneur at heart. I make stuff then give it away free, I am too sick to actually work.
I try not to be sad. I have a house, a husband who works and cares for me. I know it could be worse. But I am literally unable to do anything. I was a perfectionist and work-a-holic, happily! I LOVED every second. Now I am bored and/or in pain. It is no life, yet it is the only life I have.